In this expert interview, Dr. Anand Shankar S explains how psycho-oncology helps cancer patients cope with emotional distress, improves treatment adherence, supports caregivers, and preserves dignity throughout survivorship and end-of-life care. 
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Why Psycho-Oncology Matters: Dr. Anand Shankar S on Cancer, Emotional Distress & End-of-Life Dignity

Dr. Anand Shankar S explains how psycho-oncology supports cancer patients, improves treatment outcomes, and preserves dignity at end of life

Dr. Akriti Mishra

In this edition of MedBound Times, Dr. Akriti Mishra speaks with Dr. Anand Shankar S, a Senior Fellow in Pain and Palliative Care at Government Medical College, Kozhikode. With an MDS in Oral Medicine and Maxillofacial Radiology from NITTE University, Mangalore, and a PG Diploma in Public Health from Annamalai University, Cuddalore, Tamil Nadu, Dr. Anand brings a strong interdisciplinary foundation to patient care. He has completed a Fellowship in Pain and Palliative Care from Government Medical College, Kozhikode, is certified in Orofacial Pain through GIAN, and has advanced training in Trauma Life Support from JIPMER.

In this interview, Dr. Anand shares insights from his journey across oral medicine, public health, and palliative care, reflecting on the evolving role of evidence based practice in improving quality of life for patients with chronic and terminal illnesses.

Dr. Akriti: What led you to choose psycho-oncology, and what drew you toward working at the intersection of mental health and cancer care?

Dr. Anand Shankar S: I was drawn to psycho-oncology because it stands at the very human-crossroad of illness, identity, fear, and hope. Early in my training, I noticed how a cancer diagnosis affects not just the body. Patients were not only dealing with treatment plans, but also anxiety, grief, changes in relationships, and difficult questions about life and death, all while trying to make important medical decisions.

Research in psycho-neuroimmunology and behavioral medicine research provide evidence that stress, poor sleep, and unhealthy coping patterns can affect the body’s natural defence systems and overall strength during cancer treatment. These insights highlight why psychological care should be a core part of oncology, not something separate or secondary. Supporting a patient’s mental and emotional well-being is closely connected to their overall health and recovery.

Dr. Akriti: From your experience, what emotional or psychological struggles do people with cancer commonly go through, and which ones are often overlooked?

Dr. Anand Shankar S: From a psycho-oncology perspective, cancer is not a single emotional event. It is a journey of distress that often begins at diagnosis and can continue long after treatment ends. Emotional suffering is shaped by many factors, including the nature of the disease, the intensity of the treatment, personal coping styles, family dynamics, cultural beliefs, and the way the patient's system responds.

In my experience, some deeper and long-term aspects of distress often go unnoticed:

  • Existential distress and loss of meaning: Cancer can shake a person’s basic sense of control, identity and fairness. Patients may struggle with hopelessness, spiritual conflict, or a sense that life no longer feels the same. This is different from clinical depression and is often overlooked.

  • Difficulty living with uncertainty: Ongoing questions about prognosis, scan results, or remission can create constant worry and tension, even when the patient is medically stable.

  • Changes in identity and roles: Many patients find it hard to adjust to becoming dependent on others or stepping away from professional and family responsibilities. They may feel like they are no longer the person they once were.

  • Emotional suppression: Some patients hide their distress to avoid worrying loved ones or to appear strong and positive. This often leads to silent suffering.

  • Strain in relationships: Illness can affect intimacy, communication, and family roles. These changes are common but are rarely addressed unless serious conflict arises.

  • Distress after treatment ends: Emotional difficulties may actually increase once active treatment is over, as medical supervision reduces but fear of recurrence remains.

  • Financial stress and social instability: The cost of treatment and loss of income can deeply affect mental well-being, yet these pressures are often treated as separate from psychological care.

  • Cultural beliefs and stigma: In many communities, including low- and middle-income countries, stigma, fatalistic attitudes, or moral judgments about illness can add another layer of emotional burden.

  • Emotional needs at the end of life: Concerns about dignity, abandonment, and unfinished life stories are deeply human needs that may be overshadowed when care focuses only on physical symptoms.

Cancer’s emotional impact often remains hidden. Existential distress, uncertainty, stigma, and financial stress can deeply affect mental health and recovery.

Recognizing these layers of distress allows us to see the person beyond the diagnosis and to respond with care that addresses both emotional and physical well-being.

Dr. Akriti: How can unaddressed emotional distress affect a patient’s treatment journey, recovery, or overall quality of life?

Dr. Anand Shankar S: When anxiety, depression, or a sense of demoralisation go unnoticed, they can affect a patient’s ability to make clear decisions. A distressed patient may find it hard to process complex medical information, which can lead to regret later, delays in giving consent, or even avoidance of treatments that could be life-saving. Fear and hopelessness may also reduce trust in the medical team and make patients more vulnerable to misinformation.

Emotional distress is closely linked to poor treatment adherence. Patients may miss appointments, stop chemotherapy or radiotherapy early, take medications inconsistently, or disengage from supportive care. From a psycho-oncology perspective, this happens because distress reduces both mental clarity and the emotional energy required to continue long and demanding treatment plans.

Impact on recovery and clinical outcomes

Ongoing psychological distress keeps the body in a prolonged stress state. This is often associated with increased pain, greater fatigue, sleep problems, and difficulties with concentration and memory, sometimes referred to as “chemo brain.” These symptoms can slow recovery and make treatment side effects feel more intense.

Patients may also withdraw socially or struggle with changes in identity, which can make returning to work, relationships, and daily life more difficult. Even when someone is medically disease-free, these emotional challenges can significantly reduce their sense of well-being.

Impact on overall quality of life

Quality of life in cancer care includes physical, emotional, social, functional, and spiritual well-being. When emotional distress is not addressed, it can affect all of these areas at once. It may:

  • Increase the burden of physical symptoms

  • Strain family and caregiver relationships

  • Reduce independence and sense of meaning

  • Deepen feelings of helplessness or loss of dignity

Untreated emotional distress in cancer patients can reduce treatment adherence, worsen fatigue, affect sleep, and lower overall quality of life.

It is important to recognize that survival alone does not equal recovery. A person may overcome cancer medically but continue to live with fear, fatigue, and emotional pain if psychological needs are not properly supported.

Dr. Akriti: Family members and caregivers often carry a heavy emotional load. How do you support them while caring for someone with cancer?

Dr. Anand Shankar S: That is an important and often overlooked question. From a psycho-oncology perspective, family members and caregivers are not just support systems. They are often carrying their own emotional burden alongside the patient. Supporting these “co-patients” is not optional. It is essential for steady and sustainable care. 

How to support families and caregivers

  1. Recognize caregiver distress as real and valid: Caregivers frequently experience anxiety, low mood, guilt, frustration, anticipatory grief, and burnout. Many feel they must remain strong and do not allow themselves to struggle. Clinicians can help by openly acknowledging this strain during consultations. Even a simple statement such as, “This is difficult for you as well,” can reduce feelings of isolation and silence.

  2. Involve caregivers meaningfully in the care journey: Caregivers are often present at appointments, but only for practical reasons. They should also be included in emotional and decision-related discussions when appropriate. Asking about their understanding, fears, and expectations helps prevent miscommunication and reduces tension within the family.

  3. Screen for distress and burnout early: Support should not begin only when a crisis occurs. Simple check-ins or short screening tools can help identify early signs of strain. Warning signs may include sleep problems, irritability, withdrawal, physical complaints, or becoming overly controlling. Early recognition can prevent emotional exhaustion later.

  4. Normalize mixed emotions: Caregivers may feel love and frustration, hope and exhaustion, commitment and a desire for escape at the same time. These reactions are human. Naming and normalizing them reduces guilt, which is often one of the heaviest burdens caregivers carry.

  5. Offer structured emotional support: Support should be active and organized, not just offered “if needed.” This may include - 

    • individual or family counseling, 

    • caregiver support groups, and 

    • brief guidance on coping with uncertainty and anticipatory grief

Cancer caregivers face burnout, anxiety, and grief. Supporting caregiver mental health improves patient outcomes and strengthens cancer care.

Supporting caregivers alongside patients helps create a healthier environment for everyone involved. When caregivers feel seen and supported, the overall quality of care improves for the patient as well. Even short, focused interventions can make a meaningful difference in reducing distress and strengthening resilience.

Dr. Akriti: What kinds of psychological or emotional support approaches have you found most helpful in easing anxiety during cancer treatment?

Dr. Anand Shankar S: That is a very relevant question. Anxiety is common in cancer care, but it is also manageable. From a psycho-oncology perspective, the most helpful support combines emotional understanding, practical coping skills, and steady follow-up throughout the illness journey.

  1. Clear and compassionate communication - Uncertainty often creates more anxiety than difficult news itself

    • Honest, simple explanations without medical jargon

    • Clear information about side effects, timelines, and next steps

    • Consistent messaging from the entire care team

    • Even brief and empathetic communication can significantly reduce anxiety

  2. Preparing patients for emotional reactions

    • Helping patients understand what to expect before scans, procedures, and waiting periods

    • Normalizing emotional ups and downs at different stages of treatment

    • When patients know their reactions are normal, they regain a sense of control

  3. Supportive counseling - Often the first step in psycho-oncology support. Even short sessions can reduce distress meaningfully.

    • Providing space to express fear, anger, grief, and uncertainty without judgment

    • Offering validation instead of forced positivity

    • Focusing on coping and emotional support rather than trying to “fix” feelings

  4. Practical coping strategies - Structured techniques can help patients manage anxious thoughts. These tools are practical and give patients a sense of control, especially during scan-related anxiety or medical procedures.

    • Addressing worst-case thinking such as assuming every symptom means relapse

    • Teaching grounding techniques and simple reframing methods

    • Supporting patients through scan-related anxiety and procedural fear

  5. Peer and group support - Connecting with others who are going through similar experiences reduces isolation. This helps normalise emotions and reduce fear of the unknown.

    • Support groups, either in person or online

    • Peer mentors or survivor support programs

  6. Complementary supportive approaches - These approaches support emotional balance and help patients feel more connected to their bodies.

    • Yoga and gentle movement

    • Acupressure or acupuncture for symptom-related anxiety

    • Creative therapies such as art, music, or writing

Psycho-oncology helps reduce cancer anxiety through counseling, clear communication, coping strategies, and emotional support during treatment.

Dr. Akriti: After treatment ends, many patients continue to face challenges. How important is psychological support during survivorship and the post-treatment phase?

Dr. Anand: From a psycho-oncology perspective, survivorship is a period of psychological vulnerability rather than relief.

Why distress often peaks after treatment ends?

During active treatment, patients are held within a structured system of frequent visits, clear goals, constant monitoring. 

However, treatment ends:

  • External support drops off abruptly

  • The body feels unfamiliar and untrustworthy

  • The patient is expected to “be grateful and move on”

This creates a psychological vacuum.

Key psychological challenges in survivorship: 

  1. Fear of recurrence (FoR) - This is the most prevalent survivorship concern, even in low-risk disease.

    • Triggered by bodily sensations, follow-ups, scans, anniversaries

    • Can become chronic, impairing sleep, concentration, and functioning

    • Often minimized because the patient is “cured”

Without support, FoR can dominate daily life.

  1. Loss of identity and meaning

Many survivors ask:

  • Who am I now?

  • How do I return to life that has moved on without me?

There may be grief for the pre-cancer self, altered priorities, or difficulty reintegrating into work and relationships.

  1. Emotional whiplash and delayed processing - During treatment, patients often function in “survival mode.” Post-treatment is when suppressed fear, grief, and trauma emerge.

This can look like:

  • Anxiety or depressive symptoms

  • Irritability or emotional numbness

  • Post-traumatic stress–like responses

  1. Physical–psychological overlap - Persistent fatigue, pain, cognitive changes, sexual dysfunction, and body-image concerns interact with emotional distress, worsening the Quality of Life (QoL)if not addressed holistically.

Cancer survivorship brings fear of recurrence, identity changes, and emotional challenges. Psychological support improves long-term recovery and quality of life.

Why psychological support matters in survivorship?

It improves quality of life. Targeted psychological interventions include:

  • Reduce fear of recurrence

  • Improve emotional regulation and sleep

  • Support return to work and social roles

QoL becomes a meaningful outcome, not just survival.

Dr. Akriti: Conversations around end-of-life care are often difficult. How can psychological support help patients and families navigate this phase with dignity and comfort?

Dr. Anand: End-of-life care is not only about managing physical symptoms, it is about how a person lives until death. From a psycho-oncology and palliative care perspective, psychological support is central to preserving dignity, comfort, and meaning during this phase.

  1. Reduces fear and emotional suffering: Fear of death, pain, abandonment, and loss of control is common, yet often unspoken. Psychological support provides a safe space to:

  • Express fears openly without being corrected or rushed

  • Separate realistic concerns from overwhelming worst-case thoughts

  • Reduce panic, agitation, and emotional distress

  1. Preserves dignity and personhood: As illness progresses, patients may feel defined only by their diagnosis or physical decline. Psychological care:

  • Affirms the person beyond the illness

  • Respects individual values, preferences, and identity

  • Supports decision-making wherever possible

  1. Helps process grief, loss, and unfinished matters: The end of life often involves multiple losses, including independence, roles, and future plans. Psychological support helps patients:

  • Grieve these losses

  • Express regret, forgiveness, gratitude, or love

  • Address unresolved relationships or life stories

  1. Supports meaning, purpose, and peace: Questions about meaning and life’s purpose often become more intense at this stage. Therapeutic conversations can help patients:

  • Reflect on what has mattered most in their lives

  • Affirm their values and legacy

  • Feel a sense of completion rather than despair

  1. Improves the experience of physical symptoms: Emotional distress can intensify pain, breathlessness, and fatigue. When anxiety and emotional tension are reduced, psychological support:

  • Lowers the perceived burden of symptoms

  • Enhances the benefits of medical care

  • Promotes better rest and emotional calm

What dignified end-of-life care looks like 

  • Being listened to without feeling rushed

  • Having both physical pain and emotional distress taken seriously

  • Having personal choices respected

  • Being free to express fear, hope, faith, or doubt

  • Feeling supported and not alone

Dr. Akriti: Many chronic illnesses like dementia carry a similar emotional burden. How do psychological care needs overlap or differ across these conditions?

Dr. Anand: Cancer-related psychological symptoms may appear similar on the surface, but their causes, course, and treatment needs are different. Labeling all emotional distress as “depression” can lead to both over-treatment and under-treatment.

  1. Depression in the context of cancer

  • Nature

    • A clinical mental health condition

    • May exist before cancer, be triggered by it, or occur separately

    • Marked by persistent low mood, loss of interest or pleasure, deep hopelessness, guilt, thoughts of self-harm, and clear decline in daily functioning beyond what would be expected

  • Psychological care approach

    • Careful assessment and possible use of antidepressant medication

    • Structured psychotherapy

    • Ongoing monitoring for suicide risk and functional decline

  • Goal

    • To treat a clinical condition, restore functioning, and reduce the risk of serious harm.

  1. Stress, anxiety, and cancer-related distress

  • Nature

    • A natural response to diagnosis, treatment, uncertainty, and threat to life

    • May include fear of recurrence, anxiety before procedures, adjustment difficulties, loss of meaning, or demoralization

    • Often rises and falls with major illness milestones such as diagnosis, scans, relapse, or end of treatment

  • Psychological care approach

    • Supportive counseling and clear information

    • Normalizing emotional reactions

    • Teaching coping skills such as relaxation, grounding, and mindfulness

    • Meaning-focused conversations and reflective approaches

    • Involving family when appropriate

    • Often brief and time-limited support is enough

    • Medication is usually not the first step unless symptoms become severe or long-lasting

  • Goal

    • To help patients adjust, strengthen coping, and reduce suffering without labeling normal reactions as illness.

Not all emotional distress in cancer is depression. Understanding the difference helps ensure the right psychological support and treatment.

Why does this distinction matter?

Psycho-oncology values careful and thoughtful emotional care, just as cancer treatment itself requires careful decision-making.

  • Treating normal distress as a medical disorder can make patients feel misunderstood

  • Failing to recognize true depression can lead to serious consequences

  • Clear identification improves treatment adherence, quality of life, and trust between patient and clinician

The stepped-care model

  • Mild distress → Education and supportive conversations

  • Moderate distress → Brief therapy and coping skills training

  • Severe or ongoing symptoms → Specialist psycho-oncology support and psychiatric care

Patients may move up or down this support ladder over time, depending on their needs.

Dr. Akriti: How do you see digital tools or tele-counselling helping expand access to psychological care in psycho-oncology?

Dr. Anand: Tele-counselling has become a quiet but meaningful support in psycho-oncology, especially where access, stigma, distance, or physical weakness make in-person visits difficult. When thoughtfully integrated, it helps more patients receive timely psychological care, including in areas such as palliative dentistry.

Role of tele-counselling in psycho-oncology

  1. Expanding access despite distance or physical limits : Many cancer patients, particularly those with advanced illness, cannot travel easily because of fatigue, pain, low immunity, or financial strain. This is especially important in settings where specialist services are available only in larger cities. Tele-counselling:

  • Brings psychological support directly into the patient’s home

  • Reaches rural and underserved communities

  • Reduces missed appointments and drop-outs from care

  1. Reducing stigma and making help easier to seek: Speaking from home often feels safer and more private. Tele-counselling:

  • Lowers the hesitation to seek mental health support

  • Reduces fear of being labeled or judged

  • Encourages patients to seek help earlier rather than waiting for a crisis

  1. Providing continuity throughout the illness journey: Cancer-related distress changes over time. A steady connection helps patients feel supported as their needs evolve. Tele-counselling allows ongoing support:

  1. Supporting caregivers and families: Caregivers often struggle to leave the patient to seek help for themselves. Tele-counselling:

  • Allows joint patient and caregiver sessions

  • Offers private sessions for caregivers to share their emotions

  • Helps reduce burnout and indirectly improves patient care

Tele-counselling in palliative and end-of-life care

In advanced illness, emotional needs often increase while physical mobility decreases. Tele-counselling can: 

  • Help manage anxiety, fear, and anticipatory grief

  • Support conversations about care preferences and goals

  • Provide a steady psychological presence when in-person visits are not possible

Even brief and regular virtual contact can reduce feelings of isolation and abandonment, reminding patients and families that they are not alone.

Dr. Akriti: What advice would you share with students or young professionals who are interested in working in the field of psycho-oncology?

Dr. Anand: That is a meaningful area to feel curious about. Psycho-oncology truly needs thoughtful and grounded professionals. It brings together mental health, cancer care, and palliative care to address the emotional, social, and deeper personal impact of a cancer diagnosis. Before specializing, it is important to build strong clinical foundations in assessment, therapy skills, and risk management. A clear understanding of how cancer progresses, how treatments affect patients, and how uncertainty shapes decision-making helps ensure that psychological support remains practical, relevant, and closely aligned with medical care.

A final thought

If you choose psycho-oncology, do so with clear intention. This field will change the way you understand illness, suffering, resilience, and even your own inner world. At times, that awareness can feel heavy. Yet it is also deeply meaningful and enriching, offering the privilege of walking alongside patients and families during some of the most vulnerable moments of their lives.

The stepped-care model provides personalized mental health support in cancer, from basic counseling to specialist psychiatric care when needed.

Dr. Anand’s insights reinforce a powerful message: cancer is not only a biological illness but also a psychological and existential journey. Emotional distress can influence decision-making, treatment adherence, recovery, and quality of life, making early and structured psychological support critical. By distinguishing between clinical depression and natural cancer-related distress, psycho-oncology ensures that patients receive precise and appropriate care rather than generalized labels.

Equally important is the recognition that caregivers are often silent co-sufferers who require structured support alongside patients. From anxiety management and supportive counseling to tele-counselling and dignified end-of-life care, Dr. Anand emphasizes continuity of emotional care across the entire cancer trajectory. His perspective highlights a simple but profound truth: when psychological needs are addressed with the same seriousness as physical symptoms, cancer care becomes more humane, collaborative, and complete.

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